Parent of daughter aged 7 undiagnosed

It’s 2am, I wake with a jump as she pokes at my face. I’ve only had my eyes shut for 2 hours since the last wake up. “My tummy is hurting” she says and as she stamps her feet and stiffens her body so I can’t move her. I finally get her back to bed after she has physically protested. I’m desperately trying to keep her quiet, so she doesn’t wake her brother in the bottom bunk.

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Parent of child aged 15 diagnosed ASD

In his primary school years he hated getting his haircut, he knew that if he let it grow he could hide behind his fringe as if nobody could see him and also he wouldn’t have to give eye contact, the teacher would ask me to get it cut, say that he was using his long fringe to hide behind, he was under so much anxiety and sensory issues we couldn’t find a solution as quick as that.

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Parent of child aged 9 diagnosed ASD & ADHD

After a typical night of not being able to sleep, anxiety being through the roof, I feel sick, my belly hurts, I don’t like the dark, nobody likes me, wondering the house for hours on end, can you hold me tight, squeeze me tighter to keep me safe he finally gives in and is sleeping more realistically napping 36 minutes and he’s up.  Then we start the day.

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Parent of child aged 13 diagnosed with ASD

Our day starts at 7.30 not 1 minute less or more, he sits in the same seat on settee and I help put his socks on, apparently they feel more comfortable if I do this for him, they feel weird if he does it, then we he goes to the toilet whilst I get the toothbrush and tooth paste ready, I have to brush his teeth (he is nearly 13) but he worries that he doesn’t do it to keep his teeth healthy and I suppose it’s part of our rigid routine

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Parent of daughter aged 6 diagnosed with ASD

It’s time to wake up I lay in bed waiting for mammy or daddy to come with my warm milk. I love this part of the day I like bounce on my bed scream really loudly wake everyone up including my big brother.

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Parent of Daughter age 13 son age 15 diagnosed ASD & ADHD

The day starts at 6.30 when my alarm goes off.  Get up, come down, sort breakfasts – cup of tea and concerta for child no 1, blueberry muffin and hot chocolate for child number 2. Same every day.  Routine, consistency, sameness.

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Parent of child diagnosed with ASD

It’s fast approaching the Easter holidays here and I’m not sure what I’m dreading more: being surrounded by copious amounts of chocolate (for some reason it tastes nicer when in egg form) and haircuts. Not for me, I might add – I don’t complain about being sat in a chair and pampered for three hours – but for my boys…

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